His imperfections were obvious. He wore some right on his crooked face. Those features were just the tip of the iceberg however, as his biggest struggles came from the problems within his 4 pound body.
one of the first pictures taken of Aidan
Usually when someone hears my short version of Aidan's story, they want to know what was wrong with him. Specifically. So if you are wondering the same thing, here you go--
Before he was born, at our routine find-out-the gender-ultrasound we learned that Aidan had a cleft lip and palate and an omphalocele. Don't worry, I had never heard of an omphalocele either. An omphalocele is when the abdomen doesn't close during development and part of the insides are outside. In Aidan's case it was his liver. Believe it or not, this is usually fixable--they put what is out back in. (It's a bit more complicated than that...but it is done.)
When Aidan was born by emergency c-section, I remember hubby leaning over to me in the operating room and gently saying..."he only has one ear". I didn't care about the ear--I just wanted him. However, finding something else wrong with him confirmed our worst suspicions--we didn't know the whole story yet.
After tests and xrays--the neonatologist looked at the reports and pictures and just shook her head. He was a mystery. The other struggles that surfaced over the next hours and days:
* his larynx and/or trachea was in not in the right position--
they had an extremely difficult time putting in his breathing tube.
* his right lung smaller than his left
* his spine had vertebrae anomalies--spine in an S curve
* one side of his rib cage was not formed properly
* he had a major heart defect (five things wrong with his heart!)
Everything that was wrong with him was "fixable" or he could live with. So, we began the journey of "fixing" him. Of course, fixing one thing impacted another...nothing was isolated. It was rather overwhelming, to say the least.
Through all sorts of tests and examinations by genetic specialists, we never got a diagnosis. He didn't fit any condition they knew of. The doctors used the word "fluke". yuck.
When we first learned of Aidan's issues in utero, my mom cried out to God--"God, why is this happening?? From the moment Dawn was pregnant, I prayed for a healthy, perfect baby." She says it was one of those rare times when God seemed to speak audibly into her ear. She heard "He is perfect for My purposes." We hung on to that word from God. God would redeem the terrible circumstances of Aidan's life. And He has. It looks different than we would have picked, but He has.
thank you bloggies for encouraging me to write more about Aidan--more to come